Wednesday, February 10, 2016
Thursday, May 7, 2015
As many of you know, My 9yo nephew Johnathan is undergoing an experimental treatment for Niemann Pick Type C (a terminal genetic illness).
Johnathan travels from the Bay Area CA to the NIH in Maryland monthly for treatments. My sister tries to make the trips somewhat fun since he goes through so much, but the treatment leaves him so wiped out it doesn’t seem to be able to do anything while there but rest :( He is currently there and this current treatment has him back in the hospital on an IV and medication so his zoo trip was cancelled and he is so disappointed.
I was thinking that after he gets home and rest that we should do something fun for him. Does anyone have any connections with the Oakland A’s? This is Johnathan’s favorite sports team! I would love to do something special for him involving them and thought maybe Facebook could help? Anyone have any contacts? Can you share this on your newsfeed to see if maybe one of your facebook friends do?
MANY THANKS for all who support Johnathan!!
Posted by Lucy at 1:25 PM