On March 9th 2010 Johnathan's parents got new no parent wants to hear, "I am so sorry but your child has Niemann Pick type C". Just the little we read brought us to our knees- this is not only terminal disease but one that is also referred to "childhood Alzheimer’s".
After much research about Niemann Pick type C (NPC) we knew we needed help from anyone willing to help us save Johnathan and all the children with this horrible disease. To find out more about NPC click the link below
We appreciate any amount you can spare to help find a cure to NPC. We also could use help in other ways and if you have the time please click the link below
We plan on doing many fundraisers and would love for you to join us!
To see our umpcoming events click the link below